OUR FIRST MUSIC FESTIVAL
Wear Your Pj’s Day Success Featured In Bury Times
PR World Travel Party
Frankie was diagnosed with Brachycephaly at 5 months old. His head had been severely mis-shaped for a while before that. We were very concerned, but after waiting nearly 3 months for an appointment, we were told by NHS doctors that “his hair will grow over it when he’s older”! By this point though, we had already sought private healthcare advice. His head was extremely severe; he measured off the chart that they use. There was treatment available, but it came at a cost of £1950. That would cover a helmet for Frankie to wear, and all follow up appointment. We were set for doing some fundraising, but Trewan Sands stepped in and covered the cost. A huge weight was lifted from our minds. Treatment commenced in February when he was exactly 6 months old. Frankie wore the helmet 23 hours a day, with just a short break each morning and evening. He wore it for 22 weeks and we saw a massive improvement before he outgrew it. As parents, we cannot thank the team at Trewan Sands Children’s Trust enough, we will be eternally grateful.
Anthony & Natalie Cross xx
Congratulations and thanks to Simon Josh Devenport who recently ran the Manchester Marathon for us
TSC Trust Christmas 2015 Event
Our Christmas event was a great success. A fantastic day VERY BIG THANK YOU to everyone who joined us on such a dreadful day and a MASSIVE THANK YOU to all our staff for making it such an amazing event whilst creating “Memories to Cherish” We raised £692.31 on the day which was very generously made upto £850 by Dave and Gill at the Garsdale Pub in Bury.
We now have Angel the “Face” of Trewan Sands
Angel was born on 23rd May 2011 with a big mop of black hair. She was diagnosed at birth with Fetal Valproate Syndrome, Trigonocephly and Spina Bifida Occulta She also has Hypotonia. She was later diagnosed with severe Reflux, Global Development Delay and Autism. We were told not to expect much from her. We soon realised that Angel could not see and after many tests we were told Angel would likely be blind. She could see lights though so we bought her toys with flashing lights and sat at the window with her. When she was 7 months her vision came in, it was just vastly delayed!
Angel is now 4 years old and is such a determined little girl. She enjoys going to Millwood School where she has made many friends, including the teachers. She has learnt how to count up to 10 and from 10 back to 1. She is currently learning her shapes and can read her name. Angel loves learning new things and everyday is a new day with new experiences for her.
At her Christmas nativity Angel took the centre stage to perform “Twinkle Twinkle Little Star” in sign language, she enjoyed it so much then when a child from the older class was poorly Angel stepped up again to perform in front of the older children.
Angels signing really has come on with her learning new signs every day, although she can hold a conversation, she really is a clever little girl. She recently appeared on a children’s programme on CBeebies signing “Take your finger touch your nose” which is the magic saying to “send the spotty bag”. Angel has made some very special friends here at Trewan Sands and she loves coming to the offices to entertain us with her singing, dancing and her new pout xx
Alan & Sue